April 19 | Food For Thought’s Unequal Healthscapes in California’s “Biohub”

Wednesday, April 19th
5:30-7:30 pm
Namaste Lounge

Hosted by the College Nine and Ten CoCurricular Programs Office, SJRC Assistant Director, Kate Weatherford Darling will present her research centering social justice and health inequalities in the discussion of biomedicine and US healthcare and policy. Asking the question: What would it take to build new California “healthscapes” (Clarke 2010) with visions of disability justice and health equity?

Unequal Healthscapes in California’s “Biohub”

California’s recent Tech Boom buoyed the Bay Area economy and transformed the political geography of the state and a global center of wealth. Venture capital / philanthropic investment along with public policies to promote “entrepreneurism” are rapidly changing the spaces, places of biomedical science and healthcare practice. In this talk, Kate offers an incomplete map of our unequal “healthscapes” (Clarke 2010), the cultural, economic and political terrains of health. Drawing on findings from her current and forthcoming research, she asks: What would it take to build new California healthscapes with visions of disability justice and health equity?

Katherine Weatherford Darling is Assistant Director at the Science and Justice Research Center and faculty in UCSC Sociology Department. Her research and teaching bridges Sociology of Health, Illness and Disability and Feminist Science Studies. Her current projects span diverse topics including: Post-Genomic epidemiology and HIV/AIDS science and health policy in the U.S. With UCSC and Bay Area collaborators, her new projects examine how the social and built environments of Bay Area’s tech and biotech economies are impacting the health of low-income Californians.

Flyer for Food for Thought

Flyer for Food for Thought

April 25 | Online Film Screening: The State of Eugenics

Tuesday, April 25 at 3:30 PST
What is the legacy of government sponsored eugenics programs? Learn more and join the discussion following a special screening of THE STATE OF EUGENICS on Tuesday, April 25 at 3:30pm PT presented by Facing History and Ourselves and Reel South.

Between 1933 and 1974, the state of North Carolina ran one of the most aggressive eugenics programs, sterilizing more than 7,600 men, women and children. This film follows the journey of survivors, legislators and journalists who insist the state confront its role in the tragic, forced sterilization of thousands of Americans thought to have “undesirable” genetics.

Duration: 90 minutes

More details are at http://bit.ly/tsoe2017
Promotional Video: https://vimeo.com/195666167

Further Reading:

2017 Los Angeles Times Editorial: California needs to do more than apologize to people it sterilized

2016 PBS: Unwanted Sterilization and Eugenics Programs in the United States

2014 Center for Investigative Reporting: Female prison inmates sterilized illegally, California audit confirms

2014 Press Enterprise: Female inmates, some in Chino, unlawfully sterilized

2014 California State AUDIT: Sterilization of Female Inmates Some Inmates Were Sterilized Unlawfully, and Safeguards Designed to Limit Occurrences of the Procedure Failed

2013 Center for Investigative Reporting: Female inmates sterilized in California prisons without approval

2013 Center for Investigative Reporting Video: Sterilized Behind Bars

 

Jan 25 | Against Purity

Wednesday, January 25, 2017
4:00-6:00 PM
Engineering 2, Room 599

Science and Justice Visiting Scholar and UCSC alum Alexis Shotwell, Associate Professor of Sociology and Anthropology at Carleton University, will be in conversation with Jess Neasbitt (History of Consciousness, UCSC) about politics, movements and ethics in her new book Against Purity: Living Ethically in Compromised TimesAgainst Purity proposes a powerful new conception of social movements as custodians for the past and incubators for liberated futures. Against Purity undertakes an analysis that draws on theories of race, disability, gender, and animal ethics as a foundation for an innovative approach to the politics and ethics of responding to systemic problems.

Jan 23 | Film Screening: KONELĪNE: our land beautiful

Best Canadian Documentary, Hot Docs 2016

konelineTRANSCENDENT… epic spectacle. […]She lets the camera hunt for art in every frame, mining veins of abstract beauty rather than sharp nuggets of political narrative”  Brian D. Johnson, Maclean’s

ASTONISHING, stunningly beautiful. […] Equal parts sigh, song and cry.”  Linda Barnard, Toronto Star

BREATHTAKING, gripping. […] Finds beauty in unexpected places.” David Perri, The Northern Miner

WINNER of the Best Canadian Film of 2016 at the HOT DOCS Intl’ Film Festival, KONELĪNE: our land beautiful brings its sensual and visceral ride to UC Santa Cruz:

Monday, January 23, 2017

Humanities 2, room 259  4:30PM

KONELĪNE Trailer: https://vimeo.com/180675200

Celebrated for using art to seek beauty and complexity where you least expect to find them, KONELĪNE (pronounced Ko-na- lee´-na)  is garnering rave reviews for its fair-minded and cinematically stunning exploration of northwest British Columbia and the extraordinary people who move across that land.  Set deep in the traditional territory of the Tahltan First Nation, KONELĪNE captures an epic canvas of beauty and complexity as one of Canada’s vast wildernesses undergoes irrevocable change.

Directed by award-winning filmmaker Nettie Wild, KONELĪNE delights in exploding stereotypes with scenes of breathtaking spectacle. Heidi Gutfrucht, both a big-game hunter and fierce environmentalist, swims her 17 horses across the unforgiving Stikine River. A Tahltan First Nation diamond driller bores deep into the same territory his elders are fighting to protect.  And a white hunter carries a bow and arrow while a Tahltan elder shoots moose with a high-powered rifle.

Cameraman Van Royko won the 2016 Award for Best Documentary Cinematography from the Canadian Society of Cinematographers for KONELĪNE, which is shot and projected in wide screen with surround sound.

KONELĪNE: our land beautiful is a cinematic poem that cuts through the rhetorical roar of our times. It’s turning heads and changing minds. Don’t miss it.  96 mins with conversation to follow.

 

KONELĪNE: our land beautiful is a Canada Wild production, produced in association with Telefilm Canada and the Rogers Group of Funds through the Theatrical Documentary Program; Super Channel; Canal D, a division of Bell Media Inc.; Knowledge Network; The Canada Media Fund; developed in association with The National Film Board and Creative BC; produced with the participation of Rogers Documentary Fund; the Shaw Media/Hot Docs Completion Fund; the Canadian Film or Video Tax Credit; and the Province of British Columbia Film Incentive BC.

The Quants of Wall Street: Risk and the Ethics of New Financial Technologies

Who wins and who loses as Wall Street transforms from sweaty bodies on the stock exchange floor to quants and physicists designing swift, sleek stealth modes of moving financial data at a distance? What new opacities and inequalities accompany the rise of new financial technologies—such as Bitcoins, roboadvisers, and laser-linked data centers — the new coin and conduits of financial realms? The Science and Justice Research Center in collaboration with the Center for Analytical Finance and the Sociology Department host a discussion with industry, academic and NGO leaders on these critical questions about who benefits and who loses in the high tech worlds of today’s financial markets.

 

Sherry Paul CFP®, CIMA®, and CRPC®, Senior Vice President, Wealth Advisor, UCSC Alumna

Daniel Friedman, UCSC Distinguished Professor of Economics, Author of Morals and Markets

Anne Price, Program Director of the Closing the Racial Wealth Gap Initiative, Insight

Moderated by Joe Klett, Visiting Professor of Sociology, UCSC and Nirvikar Singh, Director of the Center for Analytical Finance, Distinguished Professor of Economics at UCSC.

Co-Sponsored by the Blum Center, Center for Analytical Finance, Center for Labor Studies, Cowell College, Re-Thinking Capitalism, and the Sociology Department.

12:00-1:45 PM | Engineering 2 room 180

Broadening Participation in Science and Engineering: Social and Intellectual Diversity

Rap Report > Broadening Participation in Science and Engineering: Social and Intellectual Diversity

At this panel discussion, we will discuss how cultural values shape what research questions are asked and how research is conducted. Science and engineering have long been portrayed as merely merit-based domains, or, as historians of science have called it, a ‘culture of no culture’. The demographic within these fields is commonly viewed as unrelated to the quality of knowledge produced, and therefore only a concern in so far as funding agencies mandate it to be. Drawing on specific examples we will examine how research questions change depending on who is asking them, teasing apart the complex relations between research agendas and the socio-cultural identities of scientists and engineers. Investigating these questions will contribute to a better understanding of the importance of diversity within STEM fields. Furthermore, a shared examination of the experiences of inclusion and exclusion will help develop a better grasp of how to pursue social equity within science and engineering fields. Finally, it will also produce insights about what kind of knowledge is produced and for whom.

Moderator:

Ruth Müller a postdoctoral research fellow at the Research Policy Group, Lund University, Sweden and lecturer in Gender Studies, Biology & Science-Technology-Society, at the University of Vienna, focuses her research on the relations between research policy, institutional frameworks and scientific work practices, currently in the fields of climate science and epigenetics. Müller is interested in critical reflection of contemporary academic work practices and social movements in this area, such as the slow science movement. Dr. Ruth Müller joins UC Santa Cruz for a second Visiting Scholarship with the Science & Justice Research Center.

Panelists:

Faye Crosby, Provost of Cowell College, Chair of Council of Provosts, and Distinguished Professor of Psychology at UCSC specializes in social justice. Her research interests looks at the relation between objective (i.e., consensual) and subjective reality; she has looked at individual attitudes in the context of social change and stability. Crosby’s current work investigates the bases of people’s reactions to affirmative action and has launched a new series of studies on how people can undertake non-revolutionary changes in rules that come to be revealed as unfair. She is also examining other ways, such as mentoring, of enhancing the peaceful evolution of work organizations.

Barbara Gee, has 35 years of experience in the computer industry, where she has held leadership positions in all functional areas. She has worked for HP, Silicon Graphics, TiVo, and other well known tech companies. In addition, Barb has served in leadership roles in the non-profit sector (including Huckleberry Youth Programs), and prior to joining the Anita Borg Institute was the Executive Officer of Human Resources for the Oakland Unified School District. She has also served on the San Mateo County Commission on the Status of Women, the Board of Global Exchange, and is an Advisory Board member of the STEM Academy at McClymonds High School in Oakland California. Barb currently serves as the Vice President of Programs for ABI, where she oversees the execution and development of programs focused on increasing the participation of women in technical roles, with the belief that when the inventors of technology mirror those who use it, society gains. Barb received her B.S. in Electrical Engineering and Computer Science from UC Berkeley, and her Masters in Management at the Sloan School of Management at M.I.T.

Joan Haran, a Research Fellow at Cesagene (Cardiff Centre for Ethical and Social Aspects of Genomics and Epigenetics) at the Cardiff School of Social Sciences whose research revolves around gender, representation and technoscience. She is particularly interested in the policing of boundaries between science fact and science fiction. Haran has a BA (Hons) in Literature and History from North Staffordshire Polytechnic, an MA (Dist) in Gender, Society and Culture from Birkbeck College, University of London and a PhD in Sociology from Warwick University. She co-authored the monograph Human Cloning in the Media: From science fiction to science practice (Routledge 2008) which drew together media, cultural, and feminist technoscience studies preoccupations and methodologies to document the symbolic and material labor of making genomics in the media.

Melissa Jurica, Associate Professor of MCD Biology at UCSC oversees the Jurica Lab, a research lab at UCSC working to understand the structural and functional analysis of spliceosomes a tiny molecular machine found in all human cells, as it plays a critical role in how our genes encode for an organism as unique and complex as a human being. She has recently become the director of the UCSC Initiative to Maximize Student Development program, which supports both undergraduate and graduate students in an effort to increase diversity in biomedical research.

Thanks to Women in Science and Engineering (WiSE) for facilitating the following recordings of the event:

Broadening Participation Video: Part 1, Part 2, Part 3

Engineering 2, Room 599 |  May 14, 2014

Trust in Genomics: A challenge for scientists and ethicists alike

Rap Report > Trust in Genomics: A Challenge for Scientists and Ethicists Alike

Access to data and the quality of data depend partially on the quality of trust between physicians, researchers and many different patients.  When trust breaks down, patients and research subjects may request that their samples be withdrawn, or they may not provide samples and data in the first place. Technological developments that enable biomedical institutions to bank vast quantities of tissues and data today introduce new challenges to this critical project of creating and maintaining trust.  Any tissue now given for research or routine medical care technically could be used for an indefinite amount of time for entirely unforeseen purposes. In such a situation, it is hard to say that anyone understands what they are consenting to, even the researchers and physicians collecting samples and running trials.  Under these conditions, trust based in mutual understanding faces new challenges.

How to address these novel challenges will be at the center of the Science & Justice Working Group meeting on April 16, 2014, “Trust in Genomics: A Problem of Knowledge and Ethics”, 4:00-6:00PM in Engineering 2 599 on the UCSC campus. In this discussion, respected medical geneticist Wylie Burke (University Washington) and cultural anthropologist and bioethicist Barbara Koenig (UCSF) will share their experiences working with biobanks, researchers and patients to build better data sets by attending to matters of trust and respect.

Dr. Barbara Koenig, professor of medical anthropology and bioethics in the UCSF School of Nursing, is the co-Director of a newly launched research institute at UCSF dedicated to understanding the ethical, legal and social implications of translational medical genomics, The Center for Transdisciplinary ELSI Research in Translational Genomics (CT2G). By bringing together a broad, multidisciplinary range of expertise, CT2G is endeavoring to ask, and answer, questions about how genomic information will be used in a manner that benefits researchers, patients and broader publics. “A decade after the human genome was fully mapped,” Koenig argues, “figuring out how to translate genomic findings into prevention and clinical care has become a public health priority.”

Dr. Wylie Burke, Professor of Bioethics and Humanities at the University of Washington and Principal Investigator of the University of Washington Center for Genomics and Healthcare Equality, co-authored an article in Science (Trinidad et al., 2011) that highlighted the potential benefits of approaching consent (and re-consent) as an opportunity to engage with donors beyond legal formalities. She and her co-authors examine the downstream consequences of not thoroughly consenting donors for the use of their biological materials and data. Drawing on cases that have appeared in the headlines, such as the sequencing of the HeLa cell line, they examine the wide range of opinions about how best to protect patient privacy and dignity in an age when even experts cannot anticipate how biological samples might be used in the near future. In the article, they propose that “researchers and IRBs consider how the informed consent process could be used to foster respectful engagement, rather than merely mitigate risk.”

This discussion is the second in a series of discussions that the SJRC is hosting on Data Justice (see Science and Justice in an Age of Big Data: A Conversation with Peter Yu and David Haussler for a description of the first meeting held on January 22, 2014).  The meeting is co-sponsored by the Department of Molecular, Cellular, and Developmental Biology, the Center for Biomolecular Sciences and Engineering, and the GENECATS and CANCERCATS research groups.

April 16, 2014 | Engineering 2 Room 599    

 

What would a Neanderthal think of Disneyland?

I was trolling the Internet last week, looking for articles about Neanderthal cloning, and came across a rather bizarre claim about ethics and science. Why was I looking for material about Neanderthal cloning? Ed Green, who ran the bioinformatics portion of the Neanderthal Genome Project, was hired by UCSC last year and is visiting my bioethics class next week.Continue Reading What would a Neanderthal think of Disneyland?

Best-Selling “Science and Values”

The Daily Show With Jon Stewart Mon – Thurs 11p / 10c
Sam Harris
www.thedailyshow.com
Daily Show Full Episodes Political Humor Rally to Restore Sanity

Last week, Sam Harris, the author of the best-selling book, The Moral Landscape: How Science Can Determine Human Values, appeared on the Daily Show. Not even Jon Stewart could make this stuff funny. In this country, we desperately need less impoverished imaginaries about science and religion.Continue Reading Best-Selling “Science and Values”