Sea and Cities: Interdisciplinary Research in the Baltic

Baltic_SeaThe Baltic Sea is one of the largest brackish water bodies in the world. It is an especially sensitive sea, because it is a shallow and semi-enclosed body of water that receives a considerable load of pollutants from the surrounding countries. The pollution of the sea has become one of the most important common environmental issues for countries in Northern Europe. Today’s environmental problems are, however, the collective result of political decisions made in the past (not unlike the San Francisco Bay). Environmental historian Simo Laakkonen (Adjunct Professor of Social and Economic History, University of Helsinki) will draw from his experiences in directing multidisciplinary research networks in the BSimo-200x186altic Sea Region as he speaks about doing research on different spatial scales, time spans and with scholars representing science and technology. Maya Peterson (Assistant Professor of History, UCSC) will ask him to reflect upon his experiences of directing this interdisciplinary research group.

Rap Report > Sea and Cities: Interdisciplinary Research in the Baltic

4:00-6:00pm | Engineering 2, 475 | October 15, 2014

Bike-Body-Trail Assemblages

rae-bike

The Science & Justice Working Group presented “Bike-Body-Trail Assemblages,” exploring a comparative approach to mountain biking in California and Austria.  This panel explored how riders’ subjectivities are attached to and enacted by (changing) technologies of leisure, in context of local discursive and bodily practices.

Rap Report > Bike-Body-Trail Assemblages

In today’s late modern society the increasing importance of leisure activities, of having fun, of getting or staying fit and healthy is suggested by the media and a plethora of artifacts as found in sporting goods. When viewing leisure practices as mutual co-formation of making one-self available to what happens in contact with things, investigations can be anchored at debates on (new) technological objects. However, not only the talk surrounding technological objects is of interest here but how incremental changes of them can have effects on the activity, hence on us. Therefore the incremental change of wheel standards in mountain biking is chosen to finely investigate how classifying products, positioning and evaluating them leads to the formation and classification of subjects attached to those goods.

What makes this case particularly interesting is how this incremental innovation seems to provoke or allow questioning and (re-)negotiating affiliated subjectivities, pointing to the entanglement of capabilities of the subject and the object. As debates on the matter of bigger mountain bike wheels often suggest, all discourse is arbitrary if not also experiencing the ride, trail, and artifact with the body. To account for bodily and discursive practices in the field and the cultural embeddedness of this bike-body-trail assemblage, a multi-sited comparative approach between California and Austria is chosen to see one site through the lens of the other. Methods contain the observation of online forum discussions, sales situations in shops, participant observation of test rides, and interviews with riders and sales persons. The research addresses a shortage of international comparative small- to medium-scale leisure studies, extends existing studies on media and mountain biking into the practices themselves, and aims to offer insights on how subjects and objects are (re-)configured in leisure and sporting practices.

Robin Rae: Science and Technology Studies, University of Vienna, SJRC Visiting Scholar

Wade Hall: Owner and Fitter, Spokesman Bicycles

Emilie Dionne: Postdoctoral Researcher, Feminist Studies, UCSC

Engineering 2, room 506 | October 8, 2014

June 10, 2014: 24 Graduate Students Receive Science & Justice Certificate

The Science & Justice Research Center is proud to announce the recent campus approval of the Science & Justice Certificate Program. This certificate provides recognition to current graduate students who have developed collaborative research methods for exploring the meeting of questions of science and knowledge with questions of ethics and justice. For more pedagogical information on the nationally and internationally recognized Science & Justice Training Program, please read Experiments in Collaboration: Interdisciplinary Graduate Education in Science and Justice originally published in PLOS Biology.

Graduate students interested in the Science & Justice Training Program, please visit: Science & Justice Training Program.

Faculty interested in supporting the Science & Justice Training Program or for more information on our Broader Impacts Initiative, please read: Broader Impacts.

Please join us in congratulating the following graduate students on their achievements in completing the Science & Justice Certificate Program.

  • Tracy Ballinger, Biomolecular Engineering/Informatics
  • Celina Callahan-Kapoor, Anthropology
  • Zachary Caple, Anthropology
  • Ian Carbone, Physics
  • Gene A. Felice II, Digital Arts and New Media
  • Elaine Gan, Digital Arts and New Media
  • Kelly Gola, Psychology
  • Elizabeth Hare, Anthropology
  • Colin Hoag, Anthropology
  • Kathleen Uzilov, Earth and Planetary Sciences
  • Martha Kenney, History of Consciousness
  • Sophia Magnone, Literature
  • Alexis Mourezna, Philosophy
  • Andrew Murray, Sociology
  • Jennifer Liss Ohayon, Environmental Studies
  • Miriam Olivera, Environmental Studies
  • Katy Overstreet, Anthropology
  • Derek Padilla, Physics
  • Felicia Peck, Politics
  • Micha Rahder, Anthropology
  • Costanza Rampini, Environmental Studies
  • Kate Richerson, Ecology and Evolutionary Biology
  • Benjamin Roome, Philosophy
  • Tiffany Wise-West, Environmental Studies

Preventing cervical cancer in Nicaragua

“Preventing cervical cancer in Nicaragua.  Can vaccines and screens be means of solidarity?”

Speaker: Kaye Edwards, Associate Professor, Haverford College
Host: Jake Metcalf

Rap Report > Preventing cervical cancer in Nicaragua. Can vaccines and screens be means of solidarity?

Kaye Edwards will talk about why cervical cancer, which is largely preventable, remains the most common cancer among women in impoverished countries like Nicaragua. Her talk will cover the natural history of this disease to highlight potential points of intervention; the social, political and economic factors that help explain why cervical cancer mortality rates are up to 12-times higher in some countries than in the United States; and the larger issue of the need for community engagement in discussions about how to prevent and treat diseases.

A member of Haverford’s faculty since 1986, Edwards received her Ph.D. from the University of Colorado in molecular, cellular, and developmental biology and did post-doctoral research in tropical parasitology in Boston. She currently teaches courses that explore various facets of social justice, including how they are embodied in the health of communities and how they are informed by Quaker faith and practice.  She is the coordinator of Haverford’s new interdisciplinary minor in Health Studies and currently serves as the faculty director of Haverford’s Quaker Affairs Office. Edwards was Director of the Center for Peace and Global Citizenship from 2003-2006 and is the founder of Haverford House, CPGC’s post-baccalaureate community-action program in Philadelphia.  She is a convinced Friend and a member of Radnor Monthly Meeting; she serves on the Board of ProNica, a Quaker organization working in solidarity with community groups in Nicaragua, and on the Corporation of Haverford College.

 

May 28, 2014 | Engineering 2 Room 599

Broadening Participation in Science and Engineering: Social and Intellectual Diversity

Rap Report > Broadening Participation in Science and Engineering: Social and Intellectual Diversity

At this panel discussion, we will discuss how cultural values shape what research questions are asked and how research is conducted. Science and engineering have long been portrayed as merely merit-based domains, or, as historians of science have called it, a ‘culture of no culture’. The demographic within these fields is commonly viewed as unrelated to the quality of knowledge produced, and therefore only a concern in so far as funding agencies mandate it to be. Drawing on specific examples we will examine how research questions change depending on who is asking them, teasing apart the complex relations between research agendas and the socio-cultural identities of scientists and engineers. Investigating these questions will contribute to a better understanding of the importance of diversity within STEM fields. Furthermore, a shared examination of the experiences of inclusion and exclusion will help develop a better grasp of how to pursue social equity within science and engineering fields. Finally, it will also produce insights about what kind of knowledge is produced and for whom.

Moderator:

Ruth Müller a postdoctoral research fellow at the Research Policy Group, Lund University, Sweden and lecturer in Gender Studies, Biology & Science-Technology-Society, at the University of Vienna, focuses her research on the relations between research policy, institutional frameworks and scientific work practices, currently in the fields of climate science and epigenetics. Müller is interested in critical reflection of contemporary academic work practices and social movements in this area, such as the slow science movement. Dr. Ruth Müller joins UC Santa Cruz for a second Visiting Scholarship with the Science & Justice Research Center.

Panelists:

Faye Crosby, Provost of Cowell College, Chair of Council of Provosts, and Distinguished Professor of Psychology at UCSC specializes in social justice. Her research interests looks at the relation between objective (i.e., consensual) and subjective reality; she has looked at individual attitudes in the context of social change and stability. Crosby’s current work investigates the bases of people’s reactions to affirmative action and has launched a new series of studies on how people can undertake non-revolutionary changes in rules that come to be revealed as unfair. She is also examining other ways, such as mentoring, of enhancing the peaceful evolution of work organizations.

Barbara Gee, has 35 years of experience in the computer industry, where she has held leadership positions in all functional areas. She has worked for HP, Silicon Graphics, TiVo, and other well known tech companies. In addition, Barb has served in leadership roles in the non-profit sector (including Huckleberry Youth Programs), and prior to joining the Anita Borg Institute was the Executive Officer of Human Resources for the Oakland Unified School District. She has also served on the San Mateo County Commission on the Status of Women, the Board of Global Exchange, and is an Advisory Board member of the STEM Academy at McClymonds High School in Oakland California. Barb currently serves as the Vice President of Programs for ABI, where she oversees the execution and development of programs focused on increasing the participation of women in technical roles, with the belief that when the inventors of technology mirror those who use it, society gains. Barb received her B.S. in Electrical Engineering and Computer Science from UC Berkeley, and her Masters in Management at the Sloan School of Management at M.I.T.

Joan Haran, a Research Fellow at Cesagene (Cardiff Centre for Ethical and Social Aspects of Genomics and Epigenetics) at the Cardiff School of Social Sciences whose research revolves around gender, representation and technoscience. She is particularly interested in the policing of boundaries between science fact and science fiction. Haran has a BA (Hons) in Literature and History from North Staffordshire Polytechnic, an MA (Dist) in Gender, Society and Culture from Birkbeck College, University of London and a PhD in Sociology from Warwick University. She co-authored the monograph Human Cloning in the Media: From science fiction to science practice (Routledge 2008) which drew together media, cultural, and feminist technoscience studies preoccupations and methodologies to document the symbolic and material labor of making genomics in the media.

Melissa Jurica, Associate Professor of MCD Biology at UCSC oversees the Jurica Lab, a research lab at UCSC working to understand the structural and functional analysis of spliceosomes a tiny molecular machine found in all human cells, as it plays a critical role in how our genes encode for an organism as unique and complex as a human being. She has recently become the director of the UCSC Initiative to Maximize Student Development program, which supports both undergraduate and graduate students in an effort to increase diversity in biomedical research.

Thanks to Women in Science and Engineering (WiSE) for facilitating the following recordings of the event:

Broadening Participation Video: Part 1, Part 2, Part 3

Engineering 2, Room 599 |  May 14, 2014

ANTHROPOCENE CONFERENCE: Arts of Living on a Damaged Planet

Can humans and other species continue to inhabit the earth together? Through noticing, describing, and imagining, we renew conversation about life on earth.

Full schedule: ANTHROPOCENE: Arts of Living on a Damaged Planet

Video documentation of the conference: 

“Anthropocene: Arts of Living on a Damaged Planet” begins Thursday evening with a talk by acclaimed science fiction author Ursula K. Le Guin at the Rio Theatre in Santa Cruz. The talk has long been sold out, but simulcast video streaming will be available at two locations on the UCSC campus: the Humanities Lecture Hall (Room 206) and Social Sciences 1 Room 110. The talk and broadcast are scheduled to begin at 7 p.m.

“Through noticing, describing, and imagining, we renew conversation about life on Earth,” is how organizers describe the conference’s objectives.

Le Guin spoke of her views on the subject in an extensive interview with the Good Times weekly newspaper. “Well, we’re at a point where how many species go extinct everyday due to human interference? How many oil spills are we going to have? How many people are running around shooting school children with repeater guns? Things are not going well,” she said.

The conference was conceived by UCSC anthropology professor Anna Tsing and is co-presented by the UCSC Anthropology Department’s Emerging Worlds initiative and Denmark’s Aarhus University Research on the Anthropocene project. The term Anthropocene is a new one, used to describe the geologic epoch defined by human disturbance of the earth’s ecosystems.

Last year, Tsing won a $5 million Niels Bohr Professorship from the Danish National Research Foundation with which she is establishing a program encompassing the humanities, natural sciences, social sciences, and the arts in an exploration the Anthropocene.

Aarhus is Denmark’s largest and second oldest university. Founded in 1928, it is located about 120 miles west of Copenhagen. Tsing spent last fall quarter at Aarhus and will teach and conduct research there during the 2014-2015 academic year. She spent time at the university in 2010 on a Guggenheim fellowship.

The conference will continue Friday and Saturday with series of talks that are free and open to the public. All will be held at the Colleges Nine and Ten Multipurpose Room on the UCSC campus. A complete schedule can be found at anthropo.ihr.ucsc.edu.

May 8, 2014 7-9pm at the Rio Theater
May 9, 2014 9-5:45pm in the College 9/10 Multipurpose Room
May 10, 2014 9:30-6pm in the College 9/10 Multipurpose Room

Film Screening “FIXED: The Science/Fiction of Human Enhancement”

A community-wide screening event featuring two refreshing new films which challenge old perspectives on disability, work, technology, the body and the future of humanity.  Post-screening discussion with Foster Andersen (Founder and President of local non-profit Shared Adventures) , Nancy Chen (UCSC, Prof of Anthropology), and Regan Brashear (LGBT Youth organizer).

The Interviewer, (12 mins)
A funny and poignant narrative film from Australia which looks at stigma and challenges to employment for people with intellectual disabilities. Watch trailer, here.

FIXED_postcardFIXED: The Science/ Fiction of Human Enhancement, (60 mins.)

From bionic limbs and neural implants to prenatal screening, researchers around the world are hard at work developing a myriad of technologies to fix or enhance the human body. Award-winning documentary, FIXED: The Science/Fiction of Human Enhancement takes a close look at the drive to be “better than human” and the radical technological innovations that may take us there.

What does “disabled” mean when a man with no legs can run faster than most people in the world? What does “normal” mean when cosmetic surgery procedures have risen over 450% percent in the last fifteen years and increasing numbers of people turn to “smart drugs” every day to get ahead at school or work? With prenatal screening able to predict hundreds of probable conditions, who should determine what kind of people get to be born? If you could augment your body’s abilities in any way imaginable, would you? Watch trailer, here.

*In honor of National Dance Week, Fixed also celebrates the rich world of disability culture by featuring excerpts of 12 of the world’s leading integrated dance companies with disabled and non-disabled dancers and other artists.

Co-sponsored by the Science and Justice Research Center and the Santa Cruz County Commission on Disabilities.

This event is part of the Reel Work Labor Film Festival. See the full schedule at www.reelwork.org.

7:00PM | Del Mar Theatre (1124 Pacific Ave., Downtown Santa Cruz)

Post-film discussion with:

Foster Andersen is the Founder and President of Shared Adventures, a non-profit organization in Santa Cruz established in 1994 dedicated to improving the quality of life of people living with disabilities. He is co-author of Living in a State of Stuck: How Assistive Technology Impacts the Lives of People with Disabilities. Andersen has degrees in Mechanical Engineering, Manufacturing Engineering, and Computer Graphics Drafting and is the inventor of Quad-bee, a patented Frisbee you can throw with your thumb that has sold over 500 worldwide. Andersen currently serves on the In-home Support Service Public Authority Advisory Commission.

Regan Brashear has been working on labor, race, youth, LGBTQ, and disability issues for over twenty years through documentary film, union organizing, community forums, and grassroots activism. Brashear has a BA in American Studies (Highest Honors, Phi Beta Kappa) and a MA in Social Documentation (Documentary Film) from UC Santa Cruz. Her interest in disability studies, which eventually led to the making of Fixed, started in 1997, after a car accident which began an ongoing journey with fibromyalgia and chronic pain.

Nancy Chen is a Professor of Anthropology at UC Santa Cruz. Her work examines the shifting boundaries between food, medicine, and bodies. She is the co-editor of Bodies in the Making:  Transgression & Transformation (2005) and has taught a graduate seminar on Bodies, Knowledge, Practice which explores many of the issues addressed in tonight’s film.

Eric Zigman has 25 years of experience in service to individuals with disabilities. He has worked with service providers and regional centers in senior management roles as well as innovative demonstrations projects involving the residential, vocational and other services. In addition, Eric has worked on several projects to support individuals transitioning from institutional care to lives in community settings. His BA is in Literature and Psychology from UC Santa Cruz and a Masters in Rehabilitation Administration from the University of San Francisco. Currently, he is the CEO of the Pomeroy Recreation and Rehabilitation Center in San Francisco.

Moderated by Lizzy Hare, Graduate Student Researcher and Fellow with UCSC Science and Justice Research Center

De-Extinction: Building Future Worlds with Extinct Organisms?

Rap Report > De-Extinction: Building Future Worlds with Extinct Organisms?

For decades, conservationists have worked to minimize human impacts and restore landscapes. Today, global climate change threatens the efficacy of their efforts, prompting them to consider interventions that many would have deemed heretical—and technologically impossible—only a generation prior.

De-extinction, the proposed revival or re-creation of extinct species using synthetic biology, has recently become a focal point in these debates. On April 23, 2014 the UCSC Science and Justice Working Group will host a symposium, “De-Extinction: Building Future Worlds with Extinct Organisms?” Panelists include Beth Shapiro (Associate Professor of Ecology and Evolutionary Biology, UCSC and National Geographic Emerging Explorer) Oliver Ryder (Director of Genetics and Kleberg Chair, San Diego Zoo’s Institute for Conservation Research), Paul Koch (UCSC Dean of Physical & Biological Sciences, Professor of Earth & Planetary Sciences), and Brian Switek (science writer, National Geographic blogs) and Allen Thompson (Oregon State University, Philosophy). Donna Haraway (Distinguished Professor Emerita, UCSC History of Consciousness Department) will provide closing commentary.

Proposals for de-extinction have sparked many conversations in bioethics and conservation science. Our hope for this symposium is to deepen the discussion by engaging questions of science and justice. We will consider the fundamental principles that shape our visions of a flourishing future for all species on the planet, and re-examine longstanding questions about the constitution of and proper relations between science, technology, and nature. The question at the center of our discussions will be: What kind of future world(s) do we want to make, and what role, if any, should engineered species have in it?

In the first panel, “Conservation and Biotechnology: For Whose Good?” speakers will explore the role of biotechnology in conservation efforts. While conservation historically has focused on the well-being of non-human species and systems, biotechnology mostly has been directed at advancing human ends. Yet many conservationists are now eager to adopt new biotechnological tools to aid their scientific research and conservation agendas, including some who favor de-extinction and possible spin-off techniques. We will discuss what challenges may arise as conservationists make use of scientific infrastructures and ethical concepts that mostly have been directed to the betterment of humans.

The second panel, “Science, Media and Spectacle: How Does Media Support, Threaten, or Change the De-extinction Agenda?” will explore the powerful imaginaries of de-extinction that have animated the public conversation. Media spectacle is central to de-extinction.  The question for the panel will be:  relates to scientific practice, policy and funding.

De-extinction has captured public attention in a way that other conservation topics rarely do. The past year has seen a proliferation of media coverage of the topic, including cover stories in the National Geographic Magazine and New York Times Sunday Magazine, a TEDx conference, and is the subject of a vibrant twitter discussion (#deextinction). Such attention and excitement brings in funders and participants, but also may generate conflict with other conservation research, practices and goals.  Excitement generated by this coverage often overlooks the central question: Which values, research agendas and techniques should guide conservation practices and our collective multi-species futures in an age of extinction?

The symposium builds on a series of ongoing Science & Justice Working Group conversations about justice in a more than human world.

Agenda:

2:00-2:15       Introduction

2:15-3:30       Panel I: Conservation and Biotechnology: For Whose Good?

Panelists:

Oliver Ryder (Director of Genetics and Kleberg Chair at San Diego Zoo’s Institute for Conservation Research; Adjunct Professor of Biology, UCSD)

Paul Koch (Dean of Physical and Biological Sciences, UCSC)

Beth Shapiro (Associate Professor of Ecology and Evolutionary Biology, UCSC)

3:30-3:45       Break

3:45-5:45       Panel II: Science, Media and Spectacle: How Does Media Support, Threaten or

                      Change the De-extinction Agenda?

Panelists:

Allen Thompson (Associate Professor of Philosophy, Oregon State University)

Brian Switek (Freelance Science Writer and Author, Phenomena-National Geographic)

Jake Metcalf (Assistant Director, Science and Justice Research Center, UCSC)

Commentator: 

Donna Haraway (Distinguished Professor Emerita of History of Consciousness, UCSC)

5:45-6:00       Conclusion

Wednesday April 23, 2014 | 2:00-6:00 pm |Engineering 2, Room 599

A UCSC campus news article appears here.

Trust in Genomics: A challenge for scientists and ethicists alike

Rap Report > Trust in Genomics: A Challenge for Scientists and Ethicists Alike

Access to data and the quality of data depend partially on the quality of trust between physicians, researchers and many different patients.  When trust breaks down, patients and research subjects may request that their samples be withdrawn, or they may not provide samples and data in the first place. Technological developments that enable biomedical institutions to bank vast quantities of tissues and data today introduce new challenges to this critical project of creating and maintaining trust.  Any tissue now given for research or routine medical care technically could be used for an indefinite amount of time for entirely unforeseen purposes. In such a situation, it is hard to say that anyone understands what they are consenting to, even the researchers and physicians collecting samples and running trials.  Under these conditions, trust based in mutual understanding faces new challenges.

How to address these novel challenges will be at the center of the Science & Justice Working Group meeting on April 16, 2014, “Trust in Genomics: A Problem of Knowledge and Ethics”, 4:00-6:00PM in Engineering 2 599 on the UCSC campus. In this discussion, respected medical geneticist Wylie Burke (University Washington) and cultural anthropologist and bioethicist Barbara Koenig (UCSF) will share their experiences working with biobanks, researchers and patients to build better data sets by attending to matters of trust and respect.

Dr. Barbara Koenig, professor of medical anthropology and bioethics in the UCSF School of Nursing, is the co-Director of a newly launched research institute at UCSF dedicated to understanding the ethical, legal and social implications of translational medical genomics, The Center for Transdisciplinary ELSI Research in Translational Genomics (CT2G). By bringing together a broad, multidisciplinary range of expertise, CT2G is endeavoring to ask, and answer, questions about how genomic information will be used in a manner that benefits researchers, patients and broader publics. “A decade after the human genome was fully mapped,” Koenig argues, “figuring out how to translate genomic findings into prevention and clinical care has become a public health priority.”

Dr. Wylie Burke, Professor of Bioethics and Humanities at the University of Washington and Principal Investigator of the University of Washington Center for Genomics and Healthcare Equality, co-authored an article in Science (Trinidad et al., 2011) that highlighted the potential benefits of approaching consent (and re-consent) as an opportunity to engage with donors beyond legal formalities. She and her co-authors examine the downstream consequences of not thoroughly consenting donors for the use of their biological materials and data. Drawing on cases that have appeared in the headlines, such as the sequencing of the HeLa cell line, they examine the wide range of opinions about how best to protect patient privacy and dignity in an age when even experts cannot anticipate how biological samples might be used in the near future. In the article, they propose that “researchers and IRBs consider how the informed consent process could be used to foster respectful engagement, rather than merely mitigate risk.”

This discussion is the second in a series of discussions that the SJRC is hosting on Data Justice (see Science and Justice in an Age of Big Data: A Conversation with Peter Yu and David Haussler for a description of the first meeting held on January 22, 2014).  The meeting is co-sponsored by the Department of Molecular, Cellular, and Developmental Biology, the Center for Biomolecular Sciences and Engineering, and the GENECATS and CANCERCATS research groups.

April 16, 2014 | Engineering 2 Room 599    

 

March 7, 2014: SJRC Director, Jenny Reardon to give talk on “Bodies of Data: Public Participation, Governance and the New Bioinformatics” at ASU

On March 7th, 2014 Science & Justice Director, Jenny Reardon along with Erik Aarden of Harvard, and Patrick Taylor from Boston Children’s will discuss Principles in Practice, a panel chaired by Jason Robert from the Center for Biology + Society at Arizona State University, Tempe.

Recent developments at the intersection of biological, information and communications technologies have opened the way to profound transformations in biomedical research and practice by eliciting and aggregating data from human bodies at scale and scope that were previously unimaginable.  Such bodies of data form a critical infrastructure for developing a more precise and personalized medicine. Building such collections depends upon the consent of individuals to supply information and tissue from their bodies, even as the future uses and meaning of such information is necessarily uncertain.

These developments have elicited profound questions about—and new experiments in— architectures of governance.  Increased access to these technologies has attracted new actors, engendered new uses, and elicited new modes of participation in research. Examples include disease advocacy driven research, crowd-sourced citizen science, and products like direct-to-consumer genetic testing.  These new entrants bring different imaginations of rights and benefits, challenging traditional approaches to biomedical research and blurring distinctions between consumer, patient and research subject.

There is a need to rethink established regimes of governance. How will these developments affect the rights, roles and responsibilities of scientists, physicians, regulators, citizens, consumers, research participants, and patients? What opportunities—and obligations—exist for extending public participation in research to include a participatory role in governance? This workshop will examine contexts where existing architectures of ethical governance have been strained and challenged, and where forms of innovation and experimentation have begun to emerge. It will draw together an international group of leaders from the biomedical sciences, engineering, social sciences, humanities, industry and government.

For full workshop information view bodies of data or visit, http://cbs.asu.edu

Co-Sponsored by: The Virginia G. Piper Charitable Trust, the Center for Policy Informatics and the Center for Biology and Society